Saturday, November 23, 2013

The Best Argument Against Autism Speaks: A Special Educator’s Perspective

The Best Argument Against Autism Speaks: A Special Educator’s Perspective

I typically do not like to write about things I am against. 
But when an organization like Autism Speaks continually misses opportunities to do the right thing and listen to the people they are supposedly advocating for…it saddens me. And if you are a special educator…it should sadden you to.
Please don’t misunderstand me. I do not wish to discount the real challenges that families face when they have autistic children. I have seen first hand how difficult it can be for my students and students’ families and I wish dearly that we could give them the support they so desperately need and deserve. But this is not the subject of this post.
As a special education teacher, my job (as I see it) is to 1) give my students access to the general education curriculum using modifications and accommodations 2) along with the Individualized Education Program (IEP) team, create an individualized plan for my students to learn and grow in independence and self-determination 3) advocate for those students who do not have a voice or for who no one believes in…because if no one does…who else will?
So why are so many people mad at Autism Speaks right now? That is an excellent question. The answer is really the best argument against this organization.
This is a statement from their “About Us” page:
Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Their longtime friend Bernie Marcus donated $25 million to help financially launch the organization. Since then, Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. We are proud of what we’ve been able to accomplish and look forward to continued successes in the years ahead.
Simple right? Their aims are 1) to find the cause of autism 2) to prevent autism 3)  to treat autism 4) to cure autism 5) to increase awareness  6) to advocate for people with autism and their families.
So what is the big deal? In following through with this agenda they have forgotten to do what their slogan implores them to do.
It’s time to listen.
Numerous autistic adults have spoken out against Autism Speaks about
As of this writing, there have been no changes to their policy and with the tone of co-founder Suzanne Wright’s “Call to Action” on the eve of their national policy meeting in Washington D.C., I don’t suspect it will change anytime soon. Here is an excerpt from John Elder Robison’s post about his resignation from Autism Speaks’ Science and Treatment Board.
No one says the Cancer Society does not speak for them. No one describes the Cystic Fibrosis Foundation as an evil organization. All that and more is said of Autism Speaks every day. I’ve tried to be a voice of moderation but it hasn’t worked. Too many of the views expressed by the organization are not my own; indeed I hold very different points of view.
Autism Speaks still has a base of support among families of young children, but it has very little support from parents of older kids, or autistic adults. And the fact is, that is the majority of the autistic population. I’ve made that point in the past; apparently to no avail. I’ve suggested things the organization could do to garner support from those groups, but those suggestions have been ignored.
There you have it. If you ran an organization that ignored the voice of people who you are supposed to be advocating for…who would you really be speaking for?
Sometimes I feel like the people at Autism Speaks have the same attitude as some educators who opine about how life would be so much better if those pesky “high-maintenance” parents would just go away. Well…those pesky autistic activists are not going away…and since it is my job to speak up for those who have no voice…I am not either.
Thanks for your time and attention.
If you would like more information about organizations that are helpful to autistic people, please check out: Autistic Self-Advocacy Network, Autism Network International, and Autism Society of America. (edited: Autism National Committee)
Short Disclaimer: I have friends and co-workers who support Autism Speaks and this post is not intended to single anyone out. If you don’t believe what I have written about Autism Speaks you might want to read this post from a previous supporter (a parent with a daughter with autism). In my opinion…it is a must read. 
- See more at: http://www.thinkinclusive.us/the-best-argument-against-autism-speaks-a-special-educators-perspective/?goback=%2Egde_99557_member_5807159921413750785#%21

Wednesday, November 20, 2013

Courts quietly confirm MMR Vaccine causes Autism

Courts quietly confirm MMR Vaccine causes Autism

After decades of passionate debate, parents probably missed the repeated admissions by drug companies and governments alike that vaccines do in fact cause autism. For concerned parents seeking the truth, it’s worth remembering that the exact same people who own the world’s drug companies also own America’s news outlets. Finding propaganda-free information has been difficult, until now. Dr. Andrew Wakefield At the center of the fifteen-year controversy is Dr. Andrew Wakefield of Austin, Texas. It was Dr. Wakefield that first publicized the link between stomach disorders and autism, and taking the findings one step further, the link between stomach disorders, autism and the Measles Mumps Rubella (MMR) vaccine. For that discovery way back in 1996, and a subsequent research paper published by the doctor in 1998, Andrew Wakefield has found himself the victim of a world-wide smear campaign by drug corporations, governments and media companies. And while Dr. Wakefield has been persecuted and prosecuted to the extent of being unable to legally practice medicine because of his discovery, he has instead become a best-selling author, the founder of the Strategic Autism Initiative, and the Director of the Autism Media Channel. But in recent months, courts, governments and vaccine manufacturers have quietly conceded the fact that the Measles Mumps Rubella (MMR) vaccine most likely does cause autism and stomach diseases. Pharmaceutical companies have even gone so far as to pay out massive monetary awards, totaling in the millions, to the victims in an attempt to compensate them for damages and to buy their silence. Grassroots outcry It was a regular reader named Kathleen that brought this ongoing story to our attention here at Whiteout Press. When asked what her connection to the vaccine-autism battle was, the young reader replied, “I just researched it for a school project a while back and then I stayed on top of it, until I couldn’t stand it anymore. I’m not a parent, nor do I belong to any organization – a mere outside observer.” This reader isn’t alone. The news that vaccines cause autism has spread across the US despite a coordinated media black-out. She takes her concerns one step further explaining, “All I want is to see this information where the public can access it. I’ve looked everywhere, and no one gives this dire Wakefield situation even ONE small mention.” She goes on to give us another motivation for her activism, “In Washington State, where I’m from, vaccines have become mandatory for school children, which is very frightening!” Landmark rulings In December 2012, two landmark decisions were announced that confirmed Dr. Wakefield’s original concern that there is a link between the MMR vaccine, autism and stomach disorders. The news went mostly unreported, but independent outlets like The Liberty Beacon finally began publishing the groundbreaking news. The website wrote last month, ‘In a recently published December 13, 2012 vaccine court ruling, hundreds of thousands of dollars were awarded to Ryan Mojabi, whose parents described how “MMR vaccinations” caused a “severe and debilitating injury to his brain, diagnosed as Autism Spectrum Disorder (‘ASD’).”’ The Liberty Beacon went on to describe the second court ruling that month, as well as similar previous verdicts writing, ‘Later the same month, the government suffered a second major defeat when young Emily Moller from Houston won compensation following vaccine-related brain injury that, once again, involved MMR and resulted in autism. The cases follow similar successful petitions in the Italian and US courts (including Hannah Poling, Bailey Banks, Misty Hyatt, Kienan Freeman, Valentino Bocca, and Julia Grimes) in which the governments conceded or the court ruled that vaccines had caused brain injury. In turn, this injury led to an ASD diagnosis. MMR vaccine was the common denominator in these cases.’ The report echoes the exact same sentiment that our reader conveyed – Dr. Wakefield has had his career and reputation destroyed over the past 15 years, but has just been vindicated. The account reports, ‘While repeated studies from around the world confirmed Wakefield’s bowel disease in autistic children and his position that safety studies of the MMR are inadequate, Dr. Wakefield ’s career has been destroyed by false allegations. Despite this he continues to work tirelessly to help solve the autism catastrophe.’ The article from The Liberty Beacon closes with a direct quote from Dr. Wakefield himself to the independent grassroots outlet, “There can be very little doubt that vaccines can and do cause autism. In these children, the evidence for an adverse reaction involving brain injury following the MMR that progresses to an autism diagnosis is compelling. It’s now a question of the body count. The parents’ story was right all along. Governments must stop playing with words while children continue to be damaged. My hope is that recognition of the intestinal disease in these children will lead to the relief of their suffering. This is long, long overdue.” Wakefield attacked again Since the world has slowly become aware of the dangers of the MMR vaccine, parents around the globe have refused to get their children vaccinated. Earlier this year, the UK government singled out Dr. Wakefield and blamed him for the rising number of measles outbreaks in the country. In an April 2013 interview, he responded publicly. The website TheRefusers.com published both the video, as well as the written transcript, of Dr. Wakefield’s public response. Below are some excerpts of the doctor’s remarks: “The important thing to say is that back in 1996-1997 I was made aware of children developing autism, regressive autism, following exposure in many cases to the measles mumps rubella vaccine. Such was my concern about the safety of that vaccine that I went back and reviewed every safety study, every pre-licensing study of the MMR vaccine and other measles-containing vaccines before they were put into children and after. And I was appalled with the quality of that science. It really was totally below par and that has been reiterated by other authoritative sources since. All I could do as a parent was to say, ‘what would I do for my child?’ That was the only honest answer I could give. My position on that has not changed. So, what happened subsequently? At that time the single measles vaccines were available freely on the National Health Service. Otherwise, I would not have suggested that option. So parents, if they were legitimately concerned about the safety of MMR could go and get the single vaccines. Six months later, the British government unilaterally withdrew the importation license for the single vaccines, therefore depriving parents of having these on the NHS; depriving parents who had legitimate concerns about the safety of MMR from a choice; denying them the opportunity to protect their children in the way that they saw fit. The news shouldn’t be left wing or right wing, conservative or liberal. It should be the news. It should be independent – Whiteout Press And I was astonished by this and I said to Dr Elizabeth Miller of the Health Protection Agency, ‘why would you do this, if your principal concern is to protect children from serious infectious disease? Why would you remove an option from parents who are legitimately concerned about the safety of MMR?’ And her answer was extraordinary. She said to me, ‘if we allow parents the option of single vaccines, it would destroy our MMR program.’ In other words, her principal concern seemed to be full protection of the MMR program and not protection of children.” Dr. Wakefield himself reiterates the final conclusion of the courts in various countries, but censored by the world’s media outlets saying: “Now this question has been answered not by me, but by the courts, by the vaccine courts in Italy and in the United States of America where it appears that many children over the last thirty years have been awarded millions of dollars for the fact that they have been brain-damaged by MMR vaccine and other vaccines and that brain damage has led to autism. That is a fact.” Read More: http://www.whydontyoutrythis.com/2013/08/courts-quietly-confirm-mmr-vaccine-causes-autism.html | Follow us on Facebook: http://www.facebook.com/whydontyoutrythis

Tuesday, November 19, 2013

Seeing Things as They Are: Dysgraphia

Seeing Things as They Are: Dysgraphia

Dysgraphia

My almost 11 year old son also has Dysgraphia.  This has actually been as hard to deal with in educating him as the Autism.  I keep learning about it and trying new ideas.

Dysgraphia is a learning disability that affects writing, which requires a complex set of motor and information processing skills. Dysgraphia makes the act of writing difficult. It can lead to problems with spelling, poor handwriting, and putting thoughts on paper. People with dysgraphia can have trouble organizing letters, numbers, and words on a line or page. This can result partly from:


  • Visual-spatial difficulties: trouble processing what the eye sees
  • Language processing difficulty: trouble processing and making sense of what the ear hears

As with all learning disabilities (LD), dysgraphia is a lifelong challenge, although how it manifests may change over time. A student with this disorder can benefit from specific accommodations in the learning environment. Extra practice learning the skills required to be an accomplished writer can also help.


There are many ways to help a person with dysgraphia achieve success. Generally strategies fall into three main categories:


  • Accommodations: providing alternatives to written expression
  • Modifications: changing expectations or tasks to minimize or avoid the area of weakness
  • Remediation: providing instruction for improving handwriting and writing skills

Although teachers and employers are required by law to make "reasonable accommodations" for individuals with learning disabilities, they may not be aware of how to help. Speak to them about dysgraphia and explain the challenges faced as a result of this learning disability.



Each type of strategy should be considered when planning instruction and support. A person with dysgraphia will benefit from help from both specialists and those who are closest to the person. Finding the most beneficial type of support is a process of trying different ideas and openly exchanging thoughts on what works best.

Young Students:

Encourage practice through low-stress opportunities for writing. This might include writing letters or in a diary, making household lists, or keeping track of sports teams.
 
  • Allow use of print or cursive - whichever is more comfortable.
  • Use large graph paper for math calculation to keep columns and rows organized.
  • Allow extra time for writing assignments.
  • Begin writing assignments creatively with drawing, or speaking ideas into a tape recorder
  • Alternate focus of writing assignments - put the emphasis on some for neatness and spelling, others for grammar or organization of ideas.
  • Explicitly teach different types of writing - expository and personal essays, short stories, poems, etc.
  • Do not judge timed assignments on neatness and spelling.
  • Have students proofread work after a delay - it's easier to see mistakes after a break.
  • Help students create a checklist for editing work - spelling, neatness, grammar, syntax, clear progression of ideas, etc.
  • Encourage use of a spell checker - speaking spell checkers are available for handwritten work
  • Reduce amount of copying; instead, focus on writing original answers and ideas
  • Have student complete tasks in small steps instead of all at once.
  • Find alternative means of assessing knowledge, such as oral reports or visual projects

Teenagers and Adults:

Many of these tips can be used by all age groups. It is never too early or too late to reinforce the skills needed to be a good writer.
 
  • Provide tape recorders to supplement note taking and to prepare for writing assignments.
  • Create a step-by-step plan that breaks writing assignments into small tasks (see below).
  • When organizing writing projects, create a list of keywords that will be useful.
  • Provide clear, constructive feedback on the quality of work, explaining both the strengths and weaknesses of the project, commenting on the structure as well as the information that is included.
  • Use assistive technology such as voice-activated software if the mechanical aspects of writing remain a major hurdle.

How to Approach Writing Assignments

  • Plan your paper (Pull together your ideas and consider how you want them in your writing.)
  • Organize your thoughts and ideas
  • Create an outline or graphic organizer to be sure you've included all your ideas.
  • Make a list of key thoughts and words you will want to use in your paper.

1. Write a Draft

This first draft should focus on getting your ideas on paper - don't worry about making spelling or grammar errors. Using a computer is helpful because it will be easier to edit later on.

2. Edit Your Work

  • Check your work for proper spelling, grammar and syntax; use a spell checker if necessary.
  • Edit your paper to elaborate and enhance content - a thesaurus is helpful for finding different ways to make your point.

3. Revise Your Work, Producing a Final Draft

  • Rewrite your work into a final draft.
  • Be sure to read it one last time before submitting it.

Study Finds High Rate of Medication Use in Children with ASD - West Palm Beach Autism & Education | Examiner.com

Study Finds High Rate of Medication Use in Children with ASD - West Palm Beach Autism & Education | Examiner.com

Prescription medications do not address the core symptoms of autism and are not be considered to be "first-line" interventions or treatment for children with ASD. At present, early, intensive, and behaviorally-based interventions are considered the most effective treatments. Nevertheless, research indicates increasing rates of psychotropic use and the simultaneous use of multiple psychotropic medications (polypharmacy) in children with ASD. Reported rates of use have ranged from 27% to 83%, with polypharmacy ranging from 10% to 20%. The most commonly prescribed medications for ASD are selective serotonin reuptake inhibitors or SSRIs such as Prozac, Zoloft, and Paxil; stimulants such as Concerta, Metadate, Methylin, Ritalin, and Adderall, and atypical neuroleptics such as Risperdal and Abilify, both with FDA approved labeling for the symptomatic (aggression and irritability) treatment of children and adolescents with ASD.
Although co-occurring problems such as hyperactivity, inattention, aggression, repetitive or compulsive behaviors, self-injury, anxiety or depression, and sleep problems may respond to a medication regimen, as well as relieve family stress and enhance adaptability, there are general concerns about these medications. For example, there is a lack of evidence documenting the safety or effectiveness of psychotropic treatment during childhood. Likewise, there is a paucity of information about the safety and effectiveness of psychotropic polypharmacy and potential interactions between and among medications that may affect individuals with complex psychiatric disorders, including ASD. As a result, detailing psychotropic use and polypharmacy among children with ASD is crucial for informing families, clinicians, and researchers.
A study published in the journal, Pediatrics, examined the use of psychotropic medications and polypharmacy by using a large and heterogeneous data set of medical and pharmacy claims for commercially insured children with ASD. Psychotropic medications included: (1) anticonvulsants/antiepileptics; (2) antidepressants; (3) antipsychotics; (4) anxiolytics; (5) attention-deficit disorder medications (both stimulants and non-stimulants); (6) lithium; and (7) anticholinergic/antiparkinsonian medications. Among 33,565 children with autism spectrum disorders, 64% used psychotropic medications and 35% had evidence of polypharmacy. Older children and those who had seizures, attention-deficit disorders, anxiety, bipolar disorder, or depression had increased risk of psychotropic use and polypharmacy. In addition, the majority of children who had seen a psychiatrist had evidence of psychotropic use.
The findings of this study indicate that despite minimal evidence of the effectiveness or appropriateness of multidrug treatment of ASD, psychotropic medications are commonly used, singly and in combination (polypharmacy), for ASD and co-occurring conditions. This has important implications for practice. Because some clinicians caring for children with ASD may not be aware of the extent and effects of psychotropic use and polypharmacy, primary care providers should carefully obtain medication histories and monitor symptoms for evidence of effectiveness. Likewise, there is an immediate need to develop standards of care around the prescription of psychotropic medications based on the best available evidence and a coordinated, multidisciplinary approach to improving the health and quality of life of children with ASD and their families. Finally, additional research is needed to understand why medications are being used (for which symptoms, behaviors, or diagnoses, and by which providers)
Spencer, D., Marshall, J., Post, B., Kulakodlu, M., Newschaffer, C., Dennen, T., Azocar, F., & Jain, A. (2013).Psychotropic medication use and polypharmacy in children with autism spectrum disorders. Pediatrics, 132, 833–840.
Lee A. Wilkinson, PhD, CCBT, NCSP is author of the award-winning book, A Best Practice Guide to Assessment and Intervention for Autism and Asperger Syndrome in Schools, published by Jessica Kingsley Publishers.

A parent letter advocating for her adhd child - National special education | Examiner.com

A parent letter advocating for her adhd child - National special education | Examiner.com

Thursday, November 14, 2013

An Unholy Alliance: Autism Speaks and the Judge Rotenberg Center

Autistic Hoya: An Unholy Alliance: Autism Speaks and the Judge Rotenberg Center

An Unholy Alliance: Autism Speaks and the Judge Rotenberg Center

Trigger warning/content: Ableism, violence, murder, torture, abuse of disabled people, electric shock, aversives. 

An Unholy Alliance:
Autism Speaks and the Judge Rotenberg Center

Lydia Brown

Autistic and disabled activists, as well as our allies, have for years criticized Autism Speaks' long history of dehumanizing rhetoric about autistic people, irresponsible financial practices, and unconscionable claim to represent autistic people without including any autistic people in their leadership — in direct contradiction to the principles of the disability rights movement. I have written numerous times on the myriad of reasons why autistic people, writ large, not only decline to support Autism Speaks but also actively condemn their goals and practices. 

Given Autism Speaks' history of damaging PSAs that exploit autistic people and our families, as well as their continual refusal to meaningfully include autistic people throughout their leadership and decision-making process, I am rarely shocked when new information arises about their projects and programs. I was not shocked at their latest PSA, an over twenty-minute-long mini documentary ostensibly about non-speaking autistic people who type to communicate, but which in reality faced sharp criticism from high-profile non-speaking autistic Amy Sequenzia, who types herself. I was not shocked at their announcement of a policy summit in Washington DC this week that will in all likelihood ignore the concerns of real autistic people about education, employment, housing, healthcare, or community living. I was not shocked (though I was deeply saddened) to read founder Suzanne Wright's message yesterday in advance of that policy summit, which once again resorted to fear-mongering language like epidemic and national health crisis, to objectify autistic people as burdens on their families or tragedies for society.

But I was shocked and profoundly disturbed by the revelation that at Autism Speaks' Walk Now for Autism in Washington DC, the city where I live, they chose to host and feature the Judge Rotenberg Center as one of their exhibitors at a resource fair.

Let me reiterate that one more time in case the prior sentence was not sufficient to jar your conscience:

Autism Speaks featured the Judge Rotenberg Center as a resource for autistic people and their families. 

Here is a scanned image of their card (you can click for a larger image) from the DC Walk's resource fair, including the Judge Rotenberg Center (#15) on the list of service providers. (Image description below the post.)



For those who may not be regular readers of Autistic Hoya, let me elaborate on the history of the Judge Rotenberg Center. The JRC, formerly known as the Behavior Research Institute, was originally founded in 1971 by Harvard-educated psychologist Matthew Israel, who studied behaviorism under B. F. Skinner. Israel opened shop in California, taking in students with significant developmental, neurological, and behavioral disabilities with a no-expulsion, no-rejection policy. His methodology of treatment was predicated on techniques called aversive interventions — slaps, forced inhalation of ammonia, food deprivation, sleep deprivation, prolonged restraint, deep-muscle pinches intended to inflict maximum pain, and long-term seclusion. One of the more disturbing practices that Israel favors is called "behavior rehearsal lessons," in which students are coerced into producing unwanted behaviors solely for the purpose of subsequently punishing them. Essentially, aversive interventions operate on the same philosophy that some people apply to animals — if you pair an unwanted behavior with a painful stimulus, the unwanted behavior will go away. 

Except in California, one of Israel's students died as a result of his "treatment" methods. The BRI was forced to relocate, and Israel settled in Rhode Island, where his abusive practices continued. In the early 1990's, Israel had a brilliant epiphany — what if he were to use electric shock as an aversive? Rhode Island's regulatory agency refused to permit the BRI to subject its residents to electric shock punishments, and so Israel moved the facility once again to Massachusetts, where it has remained ever since. The BRI invented their own device, known as the graduated electronic decelator, which is intentionally designed to be more powerful and more painful than a police taser. Students are forced to wear electrodes attached to various parts of their bodies, and whenever they engage in any unwanted behavior (anything from head-banging to flapping their hands to getting out of their seat without permission), staff press a button that causes an electric shock. When the state of Massachusetts attempted to end this barbaric practice, Israel sued the regulating agency. When he prevailed, forcing the then-Commissioner of Mental Retardation to resign, he renamed the facility after the judge who oversaw the agreement — Ernest Rotenberg. 

At least six students with disabilities have died at the JRC either directly or indirectly because of the torture inflicted upon them in the name of treatment. The former and current U.N. Special Rapporteurs on Torture, Manfred Nowak and Juan E. Méndez, have condemned the JRC's practices as torture. The U.S. Department of Justice's civil rights division has been investigating the JRC since around the time that footage of the JRC's shock treatment (link has a photosensitive epilepsy warning in addition to the trigger warning for torture) was played in open court during a civil lawsuit against the facility. The JRC is the only facility in the entire United States that uses electric shock as punishment on disabled people — a form of abuse that would readily lead to public outrage if used on convicted prisoners or animals, but that remains largely unquestioned when called "treatment" and used on disabled people instead. 

People with disabilities, family members, and community advocates have been calling for an end to the JRC's abuses for decades. I have compiled a long list of links to articles, formal reports, court documents, and videos documenting the JRC's brutal practices. Of the myriad of abuses that occur in institutional settings, the JRC's are certainly among the worst.

And yet Autism Speaks had the gall to include the JRC as a "service provider" in their resource fair at the DC Walk Now for Autism.

This is the organization that is hosting a national policy and action summit to develop a national plan on autism in Washington DC this week. An organization that explicitly and unabashedly partnered itself with the Judge Rotenberg Center. Autism Speaks' history of excluding autistic people from leadership (up through the utter absence of any autistic people whatsoever on their board in the history of the organization's existence) ought to be troubling already — and their repeated insistence on justifications for violence against autistic people murdered by family members or caregivers shocking to the conscience. This alliance between Autism Speaks and the Judge Rotenberg Center is outrageous beyond belief.

I urge policymakers and community members interested in supporting autistic people and our families to support disability rights organizations led by disabled people. It is not possible in good conscience to lend one's support to an organization that not merely siphons money away from local communities and into research that does not benefit autistic people, but actively aligns itself with a facility with a widely publicized, well-documented history of brutal abuse and torture of people with disabilities.

Those of us who are autistic deserve a national plan on autism developed with us included at the table at every step of the way. We deserve a national plan on autism that seeks to benefit us rather than harm us. We deserve a national plan on autism that condemns abuses such as those at the Judge Rotenberg Center rather than encourages complacency with those practices, let alone directly endorses them. We deserve a national plan on autism that moves away from the language of pity, fear, and tragedy, and toward achieving equality, access, and inclusion in our communities.

Autism Speaks — it is well past time for you to listen. 

(For even more irony and another healthy dose of outrage? Autism Speaks actually issued a statement explicitly condemning the Judge Rotenberg Center about a year ago, following Andre McCollins's case against the JRC going to trial. Andre, who is autistic, was shocked thirty-one times in seven hours after refusing to remove his jacket. You can read the Autism Speaks statement here. Let that irony and outrage keep building.)

--

Image description: Two scanned images of a hand-held printed card are side by side. The background of both is white. The front side bears the Walk Now for Autism Speaks logo, with the motto, Research Awareness, Compassion, beside the event information — DC Walk Now for Autism Speaks Saturday November 2, 2013 The National Mall, 8:30AM Registration, 10:00AM Walk Start. Then there is more text, "Walk Now for Autism Speaks is a fun-filled, family friendly event and is Autism Speaks' single most powerful force to fund vital research that will lead us to the answers we need. This is our 13th annual Walk Now for Autism Speaks event in the Washington, DC community!" Then a picture of a tend with a big Autism Speaks banner. Then "thanks to our generous sponsors" followed by a variety of foundation and corporate logos. The back side of the card bears a header that says "Please join us in the RESOURCE Fair!" and has two columns under that, one with booth number, and one labeled Service Provider. There are 34 booths numbered, belonging to various autism-related organizations, centers, or service providers. Number 15, which is at the top of the second column, is the Judge Rotenberg Educational Center. Beneath the list is a satellite image of the walk area with various stations labeled. 

Wednesday, November 13, 2013

Blue Springs mother outraged school district allowed to investigate alleged abuse internally

Blue Springs mother outraged school district allowed to investigate alleged abuse internally

BLUE SPRINGS, Mo. - Should a Missouri state law that allows school districts to internally investigate child abuse allegations against educators be changed?

One Blue Springs family is questioning whether the current law allowing school districts to do just that serves the best interest of children in the Show-Me State.

Jake Livingston looks like the average 9-year-old boy next door.

“(He) likes to write jokes and tell stories. Just overall if you met him, you would think he’s a normal kid,” said Susan Wolfe, his mother.

Jake has childhood alopecia. The disease caused him to lose his hair. He also has a high-functioning form of autism and ADHD. His school, Sunny Pointe Elementary, offers him some extra individualized help through its Special Education classroom.

But Wolfe said an incident in that classroom on May 7 came as a complete surprise.

Wolfe said it started as a misunderstanding between the special education teacher and Jake regarding a school assignment.

She said Jake believed he had completed the assignment the night before. The special education teacher believed it was not completed. The teacher brought Jake a new worksheet and asked him to complete it.
Wolfe said Jake ripped up the paper. That’s when she said the teacher crossed a line.

“She actually grabbed him by the back of his neck and the arm and pushed him to the floor out of his chair,” said Wolfe.

Jake had a small mark on his head from the incident. Wolfe took a picture and reported the incident to the child abuse hotline. However, she said she was surprised to learn the school district would be allowed to investigate itself. 

Missouri law allows a school district to choose whether to investigate the allegation itself or have the Department of Social Services conduct the investigation.


Wolfe told 41 Action News Investigators she believes that is a conflict of interest. She said she was not happy with how the Blue Springs School District performed its investigation.

“During this whole investigation I never knew the investigator’s name. They never contacted us," Wolfe said. "The only thing they had from us was a statement that my son wrote as a third grader as to what happened.”
The investigator obtained written statements from Jake, the teacher involved and two other paraprofessionals who were working in the classroom at the time.

Jake’s handwritten statement mirrored the statements of the two paraprofessionals. All three wrote that the teacher grabbed Jake’s arm and neck and pushed him to the floor.

The statement the teacher wrote said Jake fell to the floor.

In a letter to the Missouri Department of Social Services, the school district's Board of Education president wrote the investigation found the charge was unsubstantiated.

Wolfe told the 41 Action News investigators she was angered by the report.

“How can two adults and a child have similar report, and then the one teacher that did the assaulting has a different report and it can be dismissed?” said Wolfe.

In the report, the investigator described another incident at the same school involving the very same teacher. The investigator wrote that the principal told him in February -- just three months earlier -- that he had written and spoken to the teacher for grabbing a child by the neck and forcing his head down on the desk.

“That's alarming to me that this is not the first issue that she has had and has been addressed with her,” Wolfe said.

Her attorney, Deborah Johnson, said she believes this presents a conflict of interest.

“Why are school districts allowed to investigate themselves when there is an allegation of abuse or neglect? That makes no sense,” Johnson said.

Johnson told the 41 Action News Investigators she thinks lawmakers should take a second look at the provision of the law that allows school districts the option to investigate themselves.

“A hotline report is filed against me for social services to investigate, and that report is given to me to investigate myself? What am I going to say ‘Yes, I am guilty?’ No, I'm not going to say that. That just seems insane to me,” Johnson said.

Information obtained from the Missouri Department of Social Services shows the state received 600 calls about schools, both private and public, into the child abuse hotline in 2011. Statistics show 29 of those calls were substantiated. The Department of Social services does not keep statistics on how often school districts choose to perform investigations themselves.

The Blue Springs School District told 41 Action News the teacher in question resigned while the district was performing the investigation. A spokesperson said the district would have no further comment on the incident due to pending litigation.

A 41 Action News investigation found that teacher is still teaching special education at another school in the Kansas City area.

Jake’s family and their attorney feel that is proof the law needs


Read more: http://www.kshb.com/dpp/news/local_news/investigations/parents-question-conflict-of-interest-in-one-state-law#ixzz2kZT4Hz00